Collective interests, health research ethics and data governance for Indigenous Sámi populations

by Susanna Ragnhild Andersdatter Siri, Christina Storm Mienna, Per Axelsson

The General Data Protection Regulation (GDPR) provides a robust framework for regulating individual data collection, use, reuse, and storage across Europe, but offers limited safeguards for collective rights, such as those of Indigenous peoples. Here, we examine specific ethical guidelines and governance principles relevant to the Sámi population, and those general for Indigenous peoples, and offer recommendations for best practices in health research. In this Perspective, Susanna Siri and colleagues examine ethical guidelines and governance principles relevant to the collection, use, reuse and storage of data for the Sámi population and Indigenous peoples, and provide recommendations on best practice.

Per Axelsson

Stats

Post a comment

You need to be signed in to post comments. You can sign in here.

Comments

There are no comments yet.